RMweb Premium rab Posted May 15, 2018 RMweb Premium Share Posted May 15, 2018 We had a meeting yesterday with the surgeon who's going to do the op, the main purpose of which was for me to sign a consent form. He started off very positive, very confident about the op, confident he can remove all that needs to come out, pretty certain he can do it with through the manhole (keyhole surgery). He went on to say if he can't do it that way it will be a full open up job (tubeplate out), but I got the impression it will dent his pride if he has to do it that way. Then he started to talk about what could go wrong, which of course he had to before I could sign the form. The bit he joins up may leak, in which case I'll be back in quicker than you can say City of Truro. I may get spontaneous diahorea, when you have to go, you have to go! I may get a blood clot, quite likely I would have thought, as he's operating on a clot. Oh and there's a 2% chance I could die! Then he waved the form in front of me and asked if I was still happy to sign. I'm just glad I know Him Up There is going to be looking after me. Link to post Share on other sites More sharing options...
Andrew P Posted May 15, 2018 Author Share Posted May 15, 2018 We had a meeting yesterday with the surgeon who's going to do the op, the main purpose of which was for me to sign a consent form. He started off very positive, very confident about the op, confident he can remove all that needs to come out, pretty certain he can do it with through the manhole (keyhole surgery). He went on to say if he can't do it that way it will be a full open up job (tubeplate out), but I got the impression it will dent his pride if he has to do it that way. Then he started to talk about what could go wrong, which of course he had to before I could sign the form. The bit he joins up may leak, in which case I'll be back in quicker than you can say City of Truro. I may get spontaneous diahorea, when you have to go, you have to go! I may get a blood clot, quite likely I would have thought, as he's operating on a clot. Oh and there's a 2% chance I could die! Then he waved the form in front of me and asked if I was still happy to sign. I'm just glad I know Him Up There is going to be looking after me. All the VERY best Rab. Link to post Share on other sites More sharing options...
RMweb Gold PeterBB Posted May 16, 2018 RMweb Gold Share Posted May 16, 2018 Rab, thinking of you and trusting for a positive outcome. Link to post Share on other sites More sharing options...
Purley Oaks Posted May 16, 2018 Share Posted May 16, 2018 Thinking of you, Rab, and hoping all goes well. They'll probably give you a heavy-duty enema before the op; afterwards you'll be glad when you start farting again, and you may veer from the runs to constipation but it will all get itself right over the course of a few days, maybe a week or two. They got me to sign my consent form just after they'd inserted the pre-op enema - so you're lucky to sign yours without any urgency! Mal Link to post Share on other sites More sharing options...
RMweb Gold Oldddudders Posted May 16, 2018 RMweb Gold Share Posted May 16, 2018 Rab - we are all touched by this wretched disease, through caring for or knowing many a sufferer, and who knows whether next week it will be my turn in this hideous barrel. I hope all goes according to the surgeon's plan and you emerge to make a full and comfortable recovery. Link to post Share on other sites More sharing options...
Purley Oaks Posted May 18, 2018 Share Posted May 18, 2018 Saw my new oncologist yesterday who was very good and reassuring. He was much more positive, too, which gives me something to work with mentally. He's happy that I feel so good and look so well, which I do. The post-op scan from 5 weeks ago is what he'd expect to see from such a big op, and wants to see another scan for comparison in August. All of which gives me time to get on with living rather than worrying about whatever health problems I may not have. Thinking of you, Rab, for the op next week. Mal 9 Link to post Share on other sites More sharing options...
RMweb Premium rab Posted May 27, 2018 RMweb Premium Share Posted May 27, 2018 (edited) I went to the boiler shop Friday morning and had the tubing modified. I think it took a bit longer than planned, but it's done. Moved back to the shed in the evening &_had a drip feed to fill the boiler Friday night. Small fire lit yesterday & steam raised slowly. Had a few leaks, but think we've sorted those. Had a short run up the line this morning. Edited May 27, 2018 by rab 3 Link to post Share on other sites More sharing options...
RMweb Premium rab Posted May 29, 2018 RMweb Premium Share Posted May 29, 2018 It's 'Tie a yellow ribbon' day, I've done my time, I'm goin' home. A short run down the line and I'll be back at my home shed. 2 Link to post Share on other sites More sharing options...
RMweb Premium Gwiwer Posted May 29, 2018 RMweb Premium Share Posted May 29, 2018 As that little ditty was performed by an outfit named Dawn I sincerely hope the singing thereof represents the arrival of a new and brighter one for you rab. OK I know they were fronted by Tony Orlando who sometimes gets the credit but who ever heard of a bright new Tony? 7 Link to post Share on other sites More sharing options...
Purley Oaks Posted May 29, 2018 Share Posted May 29, 2018 It's 'Tie a yellow ribbon' day, I've done my time, I'm goin' home. A short run down the line and I'll be back at my home shed. Great news! Enjoy being back at home taking it easy for a while Mal Link to post Share on other sites More sharing options...
RMweb Premium rab Posted May 29, 2018 RMweb Premium Share Posted May 29, 2018 As that little ditty was performed by an outfit named Dawn I sincerely hope the singing thereof represents the arrival of a new and brighter one for you rab. OK I know they were fronted by Tony Orlando who sometimes gets the credit but who ever heard of a bright new Tony? Thank you that is an encouraging thought to hold on to. 6 Link to post Share on other sites More sharing options...
RMweb Premium rab Posted May 29, 2018 RMweb Premium Share Posted May 29, 2018 Great news! Enjoy being back at home taking it easy for a while Mal Thank you. I've already been told by the foreman (aka SWMBO) that I get a few days running round the yard before proper running in turns begin. 9 Link to post Share on other sites More sharing options...
RMweb Premium jamie92208 Posted May 29, 2018 RMweb Premium Share Posted May 29, 2018 Thank you. I've already been told by the foreman (aka SWMBO) that I get a few days running round the yard before proper running in turns begin. So how long before you're back on top link work then. Hope it's not too long. Jamie 1 Link to post Share on other sites More sharing options...
RMweb Premium rab Posted June 14, 2018 RMweb Premium Share Posted June 14, 2018 (edited) We saw the oncologist today. When they removed the tumour, they also removed tissue around it, which when examined, contained 22 lymph nodes, only one of which was cancerous. They have suggested I should have a course of chemo, apparently there's nothing to say the cancer would return without chemo, and there's no guarantee it won't return with chemo, but there's a 10% less chance of it returning if I have the chemo. The figures aren't that convincing, but I've agreed to give it a go and see how I get on. It'll probably start in 2-3 weeks, with 4 three week cycles. Intravenous chemo on day one, tablets twice a day for two weeks, then a break for a week. If all goes to plan, I should finish in time for my birthday in Sep, which gives me something to aim for. So I guess it's a case of making the most of the next couple of weeks. Edited June 14, 2018 by rab Link to post Share on other sites More sharing options...
RMweb Gold PeterBB Posted June 14, 2018 RMweb Gold Share Posted June 14, 2018 Hope it goes well and that you become totally well. Link to post Share on other sites More sharing options...
RMweb Premium rab Posted June 22, 2018 RMweb Premium Share Posted June 22, 2018 Well it's day 1 of chemo today. I've read all the info from the hospital heard all the horror stories, so will be interested to know what it's actually like. Link to post Share on other sites More sharing options...
Andrew P Posted June 22, 2018 Author Share Posted June 22, 2018 Well it's day 1 of chemo today. I've read all the info from the hospital heard all the horror stories, so will be interested to know what it's actually like. All the very best Brian, I hope the horror stories were exaggerated, and it's not so bad. Link to post Share on other sites More sharing options...
RMweb Gold PeterBB Posted June 22, 2018 RMweb Gold Share Posted June 22, 2018 Good luck Brian. The wife of one of our club members does not seem to have had the post dose after effects that a number have described so hopefully neither will you. Cheers, Peter Link to post Share on other sites More sharing options...
RMweb Premium rab Posted June 22, 2018 RMweb Premium Share Posted June 22, 2018 All change! I got to the hospital and my chemo prescription wasn't ready. Because I've got a long term blood condition which is being treated with a very mild chemo dose, the pharmacy weren't sure about making up the chemo for the cancer. They need to talk to the haematologist and the oncologist and they can't get hold of them both together to discuss it. I'm provisionally booked in for Tuesday now. At least I get to enjoy the weekend and I might even get to the Plymouth exhibition tomorrow. Link to post Share on other sites More sharing options...
spikey Posted June 22, 2018 Share Posted June 22, 2018 ... Because I've got a long term blood condition which is being treated with a very mild chemo dose, the pharmacy weren't sure about making up the chemo for the cancer. Well at least you now know that your hospital pharmacy's on the ball! Link to post Share on other sites More sharing options...
Andrew P Posted June 22, 2018 Author Share Posted June 22, 2018 All change! I got to the hospital and my chemo prescription wasn't ready. Because I've got a long term blood condition which is being treated with a very mild chemo dose, the pharmacy weren't sure about making up the chemo for the cancer. They need to talk to the haematologist and the oncologist and they can't get hold of them both together to discuss it. I'm provisionally booked in for Tuesday now. At least I get to enjoy the weekend and I might even get to the Plymouth exhibition tomorrow. Give Plymouth my love, not been back home for a few years now, and really miss the place. ENJOY, And all the best for Tuesday. 2 Link to post Share on other sites More sharing options...
RMweb Premium Gwiwer Posted June 22, 2018 RMweb Premium Share Posted June 22, 2018 All the best for the eventual chemo Brian. One minor hiccup now erring on the side of caution shows that these people are thorough and actually care for and about you. Link to post Share on other sites More sharing options...
RMweb Premium rab Posted June 22, 2018 RMweb Premium Share Posted June 22, 2018 All the best for the eventual chemo Brian. One minor hiccup now erring on the side of caution shows that these people are thorough and actually care for and about you. 1 Link to post Share on other sites More sharing options...
Purley Oaks Posted June 23, 2018 Share Posted June 23, 2018 We saw the oncologist today. When they removed the tumour, they also removed tissue around it, which when examined, contained 22 lymph nodes, only one of which was cancerous. They have suggested I should have a course of chemo, apparently there's nothing to say the cancer would return without chemo, and there's no guarantee it won't return with chemo, but there's a 10% less chance of it returning if I have the chemo. The figures aren't that convincing, but I've agreed to give it a go and see how I get on. It'll probably start in 2-3 weeks, with 4 three week cycles. Intravenous chemo on day one, tablets twice a day for two weeks, then a break for a week. If all goes to plan, I should finish in time for my birthday in Sep, which gives me something to aim for. All change! I got to the hospital and my chemo prescription wasn't ready. Because I've got a long term blood condition which is being treated with a very mild chemo dose, the pharmacy weren't sure about making up the chemo for the cancer. They need to talk to the haematologist and the oncologist and they can't get hold of them both together to discuss it. I'm provisionally booked in for Tuesday now. At least I get to enjoy the weekend and I might even get to the Plymouth exhibition tomorrow. Good to read both posts, Brian. (Sorry I'm over a week late responding.) Sounds like the original planned chemo was oxalyplatin, the same stuff that I had. Please let us know what happens as and when. Glad you're up and about and going places, it all helps with long-term recovery. Mal 6 Link to post Share on other sites More sharing options...
RMweb Premium rab Posted June 26, 2018 RMweb Premium Share Posted June 26, 2018 I had my 1st dose of oxalyplatin today. The only real problem I've had so far is pins and needles in my arm. When it started, the nurse reduced the pump rate which helped a bit but of course that meant it took an hour longer to run it all through. The numbness is gradually going but I must remember next time to have it in my right arm; I'm left handed and my fingers aren't quite going where I want them too. I'm starting the tablets this evening, apparently the side effects (if any) may take a couple of days to kick in. 1 Link to post Share on other sites More sharing options...
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